Hi Willow2044! Even thought the answer is AI generated, it's pretty accurate. I know it sounds like a lot, especially if it's not something you did pre-Lupus. Biggest thing for me, 50+ Sunscreen. Talk with you Rheumatologist if you have one about your specific "must dos" in the sun & if there any you might be able to get away with not always using like the umbrella. Blessing and keep fighting Willow! Always here to talk or listen💜

Yes, there is, but their specialty is pulmonary not rheumatic.

Sheesh! I hate to hear this, Willow! Is there a university medical center nearby where you can see a rheumatologist? That's worth exploring, as they are often more knowledgeable about our uncommon disease.

I see my GP next Thursday to see how my rheumatology appointment went (I complained to him the rheumatologist is blaming any findings on being too fat ( I am around 15 pounds overweight). My latest CRP was 60. The ER doctor I went to on Thursday because my face was swelling so much and so painful, did tests and said it was autoimmune. She said the CRP of 60 is never because of a person’s weight. For precautionary measures she tests for infection, but it came out negative. She gave me a name of a more thorough rheumatologist, so I might ask my GP for the referral to see him. One more chance. I was told I have lupus and APS by a hematologist, but the rheumatologist I see doesn’t like her and won’t acknowledge it - but I am on medications though for lupus and APS.