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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I got diagnosed when I was 12-13 years old.
My first indication was the pain and swelling in my knees
Thank you!!

August 23, 2025
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Reactions
A MyLupusTeam Member

25 years ago i couldnt play trumpet anymore cause my lips started losing skin and bleeding super fun time lol

August 28, 2025
A MyLupusTeam Member

I went in for my annual physical thinking I had arthritis in my hands in Nov 2023. Turns out it was SLE and IgA nephropothy. I was 48 when diagnosed.

August 26, 2025
A MyLupusTeam Member

I was diagnosed last November, age 22. My first symptom was reddish, dry eyes which my mom pointed out to me after I'd come home from a weekend at big bend national park the first week of June '24.

August 26, 2025
A MyLupusTeam Member

I was diagnosed when I was 19. I’m going to be 53 in October. Honestly I can’t remember my first symptom but I remember getting arthritis and very sick.

August 25, 2025
A MyLupusTeam Member

I was diagnosed at 24. Very recently. Last October. My first symptom was a simulated heart attack. The doctors in the ambulance were confused.

August 24, 2025

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