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Get worse but this makes no sense to me.

September 3, 2025
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MyLupusTeam

Peripheral neuropathy from lupus can cause symptoms like numbness, tingling, and difficulty moving certain parts of your body. While it's natural to worry about progression, your neurologist is correct that with proper treatment and management, symptoms don't necessarily have to get worse over time.

The key is working Show Full Answer

Peripheral neuropathy from lupus can cause symptoms like numbness, tingling, and difficulty moving certain parts of your body. While it's natural to worry about progression, your neurologist is correct that with proper treatment and management, symptoms don't necessarily have to get worse over time.

The key is working closely with your healthcare team to control the underlying inflammation that causes nerve damage. When lupus is well-managed through medications and lifestyle changes, neuropathy symptoms can often stabilize or even improve. Taking good care of yourself is essential for managing symptoms. This includes:
• Getting adequate rest
• Following a proper diet
• Taking prescribed medications consistently
• Working closely with your healthcare providers
• Making recommended lifestyle modifications

Remember that everyone's experience with lupus is different. If you notice any changes in your symptoms, always discuss them with your healthcare team so they can adjust your treatment plan as needed.

September 3, 2025
A MyLupusTeam Member

Neuropathy with Lupus doesn’t usually get worse but in some people it does and it can even improve. Like I said before I was on 3600 mg of gabepentin at one time and have gotten off it and feel better for it. I have chosen a lot of alternatives things like acupuncture and massage and osteopathic treatments. It has made a huge difference in my life. I hope wave therapy works for you.

September 3, 2025
A MyLupusTeam Member

Hi Tricia You're really having a lot going for you, but don't worry with patience God will take care of you. I'm also having a stomach problem acid reflux and sometimes it's so bad. I can't take the doctor medicine the side effects is so bad. I am using over the counter meds with prayers and patience. Do the best you can. God will do the rest.

September 3, 2025
A MyLupusTeam Member

I have felt like my condition was very well controlled and my sed rate has been in normal range but my neuropathy has stayed the same. No improvement. I’ve been taking magnesium for constipation and it has made my gabapentin not as effective. I can tell how bad it is without meds. I take 1200 mg daily of gabapentin. I want to get off of that. Going to try soft wave therapy. Praying that works. I’m not convinced mine is from autoimmune but I don’t have any other underlying conditions.

September 3, 2025
A MyLupusTeam Member

I am still waiting to have therapy for my neuropathu. My feet are getting black spots on my feet.

September 6, 2025

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