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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How does a doctor know definitively the source of your neuropathy? All 3 doctors I see have conflicting opinions. This is frustrating.

A MyLupusTeam Member asked a question 💭
NC
September 13, 2025
 · 
Reactions
A MyLupusTeam Member

I’ve been told by my rheumatologist that SLE and other conditions can be the cause of neuropathy. Factors such a diabetes, B 12 deficiency, infections and other factors could be the cause. It’s always best to see your doctor so that labs and tests can be done to determine the exact cause.

September 19, 2025
A MyLupusTeam Member

I think that’s all we will hear- but this site is confirming!! If so many of us have the same symptoms it is likely that’s the source. I have learned so much!!

September 13, 2025
MyLupusTeam

It's understandable to feel frustrated when receiving different opinions. Diagnosing the source of neuropathy in lupus typically requires a comprehensive evaluation process that includes:

• Physical examination
• Detailed review of your medical history
• Neurological examination
• Blood tests to assess lupus activity
• Show Full Answer

It's understandable to feel frustrated when receiving different opinions. Diagnosing the source of neuropathy in lupus typically requires a comprehensive evaluation process that includes:

• Physical examination
• Detailed review of your medical history
• Neurological examination
• Blood tests to assess lupus activity
• Imaging tests when necessary

Having multiple doctors involved in your care can lead to different perspectives, but working with a rheumatologist you trust should be your anchor point for coordinating care. The key is finding a rheumatologist you feel comfortable with and can openly discuss your concerns. Consider this a long-term relationship - your rheumatologist should be someone who listens to your worries about symptoms and treatment effects. Don't hesitate to schedule follow-up appointments specifically to discuss your concerns about the conflicting opinions you're receiving.

September 13, 2025
A MyLupusTeam Member

Covid caused neuropathy with weakness in my right hand, Frankie. It resolved after 6 months of hand therapy/exercises.

September 16, 2025
A MyLupusTeam Member

I think he thought result of vaccine for Covid. But I had those long before symptoms of neuropathy.

September 14, 2025

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