Yes, like every time I forget to cut a tag out of my clothes or when someone touches me to soft or to hard. It can be worse of bad pain days or exhausted days. Sometimes I try on 5 or more outfits because that day I can’t stand how the fabric touches my skin even though it might have been fine yesterday but today it is not. Sometimes blankets are to heavy or not heavy enough. Every day is different just like the rest of Lupus. Call it sensory issues or a flare or whatnot but the struggle is real. I have learned to laugh at myself and stay positive in the face of it all but it can still feel a bit much some days.

In the weeks leading up to my lupus diagnosis (before I understood ANY of what was going on) I would take my clothes off at night to get ready for bed and would experience profound relief that nothing was touching my skin. I had never experienced how painful it was to have something touching me all the time! After my diagnosis I got in the habit of changing out of work clothes and into more comfortable clothing ASAP, and still do that!

Yes! Sometime I don't want to be touched.

OMG Yes! I can't stand for anything to brush up against me anyone to touch me... I feel like I have the butterfly rash wrapped up in 3rd degree burns, pins & needles poking from underneath my skin, all while feeling bruised and sore like I'd been beaten black n blue to begin with!! 🫨😩🥵🥶🤕😭

So yeah I feel your pain(s)!
Sorry...
God bless