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A MyLupusTeam Member asked a question 💭
Houston, TX
October 7, 2025
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A MyLupusTeam Member

Yes and I hate it. I love the warm weather

October 28, 2025
A MyLupusTeam Member

Yes and once I am that cold it is very hard to warm up again. 💜

October 10, 2025
A MyLupusTeam Member

Patricia it would be a good idea for you to have a workup that includes possible underlying causes like Thyroid Issues, Small Fiber Neuropathy (SFN) and Iron Deficiency (ID).
With SFN my feet often felt cold but were not cold when I touched them. This is a common sign. A punch skin biopsy can confirm SFN.
Physicians typically recognize iron deficiency anemia (IDA) through labwork but you can be iron deficient without anemia (IDWA). https://pmc.ncbi.nlm.nih.gov/articles/PMC8002799/
With iron, keep in mind for people with inflammatory conditions that ferritin should be 100-125.
I was frustrated that insulated socks, wool socks etc weren’t working to keep my feet warm. A search for best socks for Raynaud’s led me to Heatholders socks (gloves, hats etc). The Original line is the warmest of their three lines. I live in them fall through spring. I also have several of their hats and gloves. https://www.heatholders.com/collections/all-socks
@MyLupusTeam users... @dragonflylady @MyLupusTeam users...

Iron deficiency without anaemia: a diagnosis that matters
Iron deficiency without anaemia: a diagnosis that matters
Thermal Socks
Thermal Socks
October 8, 2025 (edited)
A MyLupusTeam Member

Yes, I’m cold most of the time but then something switches and I get really hot briefly and then usually back to freezing.

October 7, 2025
MyLupusTeam

Yes! Feeling extremely cold is something many people with lupus experience. A MyLupusTeam member shared: "My hands and feet are always ice cold." This can be particularly concerning when it affects just one side of your body.

One common cause is Raynaud's phenomenon, which frequently occurs alongside lupus. This happens when Show Full Answer

Yes! Feeling extremely cold is something many people with lupus experience. A MyLupusTeam member shared: "My hands and feet are always ice cold." This can be particularly concerning when it affects just one side of your body.

One common cause is Raynaud's phenomenon, which frequently occurs alongside lupus. This happens when blood vessels in your hands, feet, or other areas constrict due to cold temperatures or stress, reducing blood flow. This can cause:
• Coldness and numbness
• Pale or discolored skin
• Tingling or burning when blood flow returns
• Episodes lasting minutes to hours Some medications used to treat lupus may also cause chills as a side effect, including:
• Corticosteroids like prednisone
• Monoclonal antibody therapies (like Benlysta)
• Immunosuppressants including methotrexate

If you're experiencing persistent or concerning cold sensations, especially if they're one-sided or accompanied by other symptoms, it's important to discuss this with your doctor. They can evaluate your symptoms and adjust your treatment plan if needed.

October 7, 2025

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