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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 9, 2025
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A MyLupusTeam Member

Cynthia, if these symptoms have worsened or if your shortness of breath is new, it sounds like you may be in a flare. Please see your rheumatologist as soon as possible! If it's been more longstanding and you had labs that looked fine while having these symptoms, I agree with Rachee about the importance of rest. Don't be hard on yourself, as we require more rest than the average person. If in doubt, please see your doctor to ensure there's no active organ flare ongoing.

If you can gradually start doing a bit of exercise, such as a 5-10 minute walk daily, this is proven to help reduce lupus fatigue. You can gradually work your way up to a goal of 30 minutes daily of walking/gentle exercise.

We all understand where you're coming from and the frustration of having low energy. Be sure you're protecting yourself from UV, eating healthy foods, and reducing stress levels, all of which help.💜

October 10, 2025
A MyLupusTeam Member

Hello CYNTHIADAVIDSON, IM RACHEE, if your on this website it's because you have a serious condition, my advice is this,rest rest get plenty of rest, you deserve to take care of yourself and hopefully those around you, family,friends, coworkers ect, need to understand what your living with, have people who are close to you read up on your condition, so they can understand and you can rest without feeling guilty, I did that and it works trust me. So I will pray for you and ask God to guide you and give you the strength in all that you need to do. GOD BLESS YOU

October 9, 2025
MyLupusTeam

Fatigue is extremely common with lupus, affecting up to 90% of people with the condition. This happens because your body uses extra energy to deal with inflammation, which can leave you feeling exhausted. When lupus is more active, fatigue tends to be worse.

Here are the main factors that can contribute to your fatigue
• Show Full Answer

Fatigue is extremely common with lupus, affecting up to 90% of people with the condition. This happens because your body uses extra energy to deal with inflammation, which can leave you feeling exhausted. When lupus is more active, fatigue tends to be worse.

Here are the main factors that can contribute to your fatigue:
• Active lupus inflammation
• Pain disrupting sleep
• Depression or anxiety
• Poor sleep quality It's completely normal to feel frustrated about not being able to do everything you want. Many people with lupus have learned to pace themselves by:
• Choosing which activities are most important each day
• Taking rest breaks when needed
• Being gentle with themselves on high-fatigue days
• Planning important activities for their higher-energy times

Remember that resting isn't being lazy - it's an important part of managing your condition. Talk to your healthcare provider about your fatigue levels, as they may want to check if your lupus is more active or if your treatment plan needs adjustment.

October 9, 2025

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