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A MyLupusTeam Member asked a question 💭
Myrtle Beach, SC

I usually have extreme fatigue midday.Now it seems so hard to get out of bed no energy this is a new symptom take hydroxichloride 2 times a day.what to do for energy also having joint pain

October 13, 2025
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A MyLupusTeam Member

Sending you hugs to feel better. I rarely have flares any more, but found pressed juices really helpful, orange, apple, beets, pineapple, carrots and celery. If you have a juicer. Papaya is another anti inflammatory. Listening to nice music helps a lot. Maybe touch base with your Dr, as he may have some suggestions. I have dry mouth and dry eyes, but I found by tucking my tongue back more, I have plenty of saliva. Haven’t resolved the dry eyes. With no flares, I’m just not as tired, but my sleep is not deep. Working on that one.
I hope you can get some relief and feel better. I take Hydroxychloroquine 400 mg a day and weigh around 130, so it works for me. 🌹🌹🌹🌹🌹🌹🌹

October 13, 2025
A MyLupusTeam Member

Wendy, the drastic increase in fatigue is worrisome for a flare, so please see your doctor!!!

@JenniferAppel--Please be aware that the maximum recommended dose of HCQ to prevent retinal toxicity is 0.5 mg/kg of your body weight, Jennifer. So for you, 300 mg daily would be the most that's considered safe. These guidelines came out several years ago, but many doctors aren't yet aware. PLEASE talk to your doctor about this!!!

October 14, 2025 (edited)
MyLupusTeam

Fatigue affects up to 90% of people with lupus and can be caused by disease activity, pain, and medications. Here are some key strategies to help manage your energy levels:

• Plan activities for times when you typically have more energy
• Maintain a consistent sleep schedule
• Eat a nutritious diet
• Stay as active as your Show Full Answer

Fatigue affects up to 90% of people with lupus and can be caused by disease activity, pain, and medications. Here are some key strategies to help manage your energy levels:

• Plan activities for times when you typically have more energy
• Maintain a consistent sleep schedule
• Eat a nutritious diet
• Stay as active as your body allows
• Consider taking vitamin D supplements (with doctor approval)
• Practice good sleep hygiene by keeping your bedroom dark and quiet Since you're experiencing new symptoms and changes in your fatigue patterns, it's important to discuss this with your healthcare provider. They may want to:

• Check for other causes of fatigue like anemia or thyroid issues
• Review your medication timing and dosage
• Help create a personalized fatigue management plan
• Suggest specific exercises for joint pain

Remember to pace yourself and include regular rest breaks throughout your day. Some MyLupusTeam members find that mapping out their daily schedule to match energy levels helps manage fatigue more effectively.

October 13, 2025

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