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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A month ago I stopped cold turkey taking hydroxychloroquine because I thought my eyesight was acting weird. Is it ok?I don't want to take it

A MyLupusTeam Member asked a question 💭
Columbia, PA
October 16, 2025
 · 
Reactions
A MyLupusTeam Member

I would talk to your eye doctor to see if any damage has happened. always check in with your rheumatologist to get the ok to stop, never stop cold turkey with any medication you have to slowly reduce your intake over the weeks.

October 17, 2025
A MyLupusTeam Member

My doctors pulled me off it as well because it was affecting my eyesight, I was see large objects. The objects have now become small, I was on it for over ten years. Blessings

October 20, 2025
A MyLupusTeam Member

consult with your doctors, these medicines should be weened off not abrupt stoppage

October 20, 2025
A MyLupusTeam Member

Please do not stop any medications without reaching out to your doctor(s) first. There can be bad side effects to stopping some medications. The only reason I stopped Plaquenil cold turkey was because my retinal specialist told me to stop taking it immediately.

October 17, 2025
MyLupusTeam

While concerns about vision changes from hydroxychloroquine are valid and should be taken seriously, stopping the medication suddenly without consulting your doctor isn't recommended. Stopping "cold turkey" can trigger severe lupus flares and cause symptoms like:

• Joint pain and swelling
• Increased body pain
• Nausea and Show Full Answer

While concerns about vision changes from hydroxychloroquine are valid and should be taken seriously, stopping the medication suddenly without consulting your doctor isn't recommended. Stopping "cold turkey" can trigger severe lupus flares and cause symptoms like:

• Joint pain and swelling
• Increased body pain
• Nausea and diarrhea
• Chest pain
• More frequent lupus flares The best approach is to:

1. Schedule an appointment with your eye doctor for a thorough vision check
2. Continue taking your medication until you speak with your rheumatologist
3. Work with your doctor to safely adjust or change your medication if needed

Regular eye exams are essential while taking hydroxychloroquine. Your doctor can monitor for any vision changes and adjust your treatment plan appropriately. They may need to stop the medication if there are signs of retinal damage, but this should be done under medical supervision.

October 16, 2025

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