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A MyLupusTeam Member asked a question 💭
Grand Junction, CO

Lately my face, mostly the sides of my cheeks, is incredibly painful. If it’s brushed against, it’s full-on agony. Wind (even a breeze) hurts so bad. It’s not just the skin either. The bones in my face hurt, makes my eyes hurt/sensitive to light, hurts to chew, open my mouth, talk, etc. This is a new symptom. Has anyone felt this before? If so, any suggestions?

November 8, 2025
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A MyLupusTeam Member

This could be trigeminal neuralgia, a painful condition affecting the facial nerve, Michelle. Medications like gabapentin or Tegretol can alleviate it, and rarely, decompression surgery is needed. Please see your doctor. I hope you get relief soon, as I know this is miserable!

November 9, 2025 (edited)
MyLupusTeam

Is extreme facial pain and sensitivity a symptom others with lupus experience?

Yes, facial pain and sensitivity like what you're describing has been experienced by other MyLupusTeam members. Some describe their cheeks burning like there's "fire under the skin" with the bones underneath feeling tender. Others mention that Show Full Answer

Is extreme facial pain and sensitivity a symptom others with lupus experience?

Yes, facial pain and sensitivity like what you're describing has been experienced by other MyLupusTeam members. Some describe their cheeks burning like there's "fire under the skin" with the bones underneath feeling tender. Others mention that even gentle touch causes pain, and their skin feels hypersensitive.

A MyLupusTeam member shared: "My cheeks burn like there's fire under the skin, and the bones underneath are tender when it is active." Another described similar symptoms: "My face and head feel like they have the worst sunburn in history. It really hurts!"

The pain affecting your bones, making it hurt to chew or open your mouth, along with light sensitivity, suggests significant inflammation happening in your face. What might be causing this?

This type of facial pain in lupus often relates to inflammation. The immune system can attack healthy tissues, causing inflammation that makes both skin and underlying structures painful and sensitive.

Common triggers include:
- Sun or UV light exposure
- Lupus flare-ups
- Malar (butterfly) rash or other lupus rashes, which can cause burning sensations even without visible discoloration

The fact that wind hurts and you have light sensitivity suggests active inflammation that needs medical attention. What can you do?

Since this is a new symptom with significant pain affecting multiple functions (chewing, talking, opening your mouth), you should contact your rheumatologist or dermatologist soon. They can determine if this is a lupus flare requiring medication adjustments.

In the meantime, protect your face from potential triggers:
- Avoid sun exposure and use SPF 30+ sunscreen
- Wear UV-blocking window shades
- Stay out of wind when possible
- Use gentle, fragrance-free skincare products

Your doctor may prescribe steroids, antimalarial drugs, or other treatments to reduce the inflammation causing your pain.

November 8, 2025
A MyLupusTeam Member

Yes, Vanessa please see your doctor. Very hard to replace your eyes! God bless and praying for you.

November 13, 2025
A MyLupusTeam Member

@VanessaWeimer--Many problems can cause eye pain, ranging from dry eyes to serious internal inflammation. Please see your ophthalmologist. I would ask for an urgent appointment, but if your vision has changed with this, Vanessa, explain that and you can hopefully get a same-day appointment. Good luck, and keep us posted.😘

November 10, 2025
A MyLupusTeam Member

My eyes have been hurting too.

November 9, 2025

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