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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Leland, NC
November 15, 2025
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MyLupusTeam

Have you experienced cold sores on your lips related to lupus?

While lupus doesn't directly cause cold sores (which are caused by the herpes simplex virus), people with lupus commonly develop mouth and nose ulcers that can affect the lips. About 25% of people with lupus develop these ulcers, which can resemble canker sores Show Full Answer

Have you experienced cold sores on your lips related to lupus?

While lupus doesn't directly cause cold sores (which are caused by the herpes simplex virus), people with lupus commonly develop mouth and nose ulcers that can affect the lips. About 25% of people with lupus develop these ulcers, which can resemble canker sores and may be triggered by:

- Lupus flare-ups
- Medications used to treat lupus, like corticosteroids
- Sun exposure and photosensitivity

These ulcers can be quite painful, making it difficult to eat and drink. Some members describe feeling bumps, sores in the corners of the mouth, or a "burning mouth syndrome" sensation.

If you're experiencing sores on your lips, it's important to talk with your doctor to determine whether they're lupus-related ulcers or something else entirely. They can help you find the best treatment approach and rule out any medication side effects or allergic reactions.

November 15, 2025
A MyLupusTeam Member

I get sores on the top and sides of my tongue which makes it painful to eat.

November 16, 2025

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