Does anyone else have Ehlers-Danlos syndrome (EDS) along with lupus?
Yes, some MyLupusTeam members have both conditions. A MyLupusTeam member shared that EDS is genetic and they got it from their mom's side, passing it on to both kids. What they initially thought were EDS flare-ups turned out to be lupus.
Research shows that Show Full Answer
Does anyone else have Ehlers-Danlos syndrome (EDS) along with lupus?
Yes, some MyLupusTeam members have both conditions. A MyLupusTeam member shared that EDS is genetic and they got it from their mom's side, passing it on to both kids. What they initially thought were EDS flare-ups turned out to be lupus.
Research shows that autoimmune conditions like lupus are more common in people with hypermobile EDS (hEDS) than in the general population, though the reasons aren't fully understood. Both conditions also occur more frequently in women. Neck pain is a symptom that can be challenging when you have both conditions. A MyLupusTeam member shared: "Having comorbid Ehlers-Danlos syndrome with borderline lupus is hard because I don't always know which one is causing the issues. My neck pain is constant."
EDS has distinct features that help with diagnosis, including:
- Joint hypermobility (loose joints)
- Stretchy, fragile skin
- Higher risk of joint dislocation
Getting an accurate diagnosis is important because it affects treatment. Bringing your CAT scan results to your rheumatologist is a great step. Writing down your symptoms beforehand can help ensure you provide a complete picture for evaluation.
November 24, 2025
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