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I have a pain at my eye socket, back of head/behind ear, neck/shoulder area, spine and front of my calf area.
I do have occipital neuralgia. It causes awful migraines. Have you tried nerve blocks or botox?
I get shots in the nerve in the back of my head to help cool things down, along with Remicade infusions. I hope you find some relief soon. This disease is cruel.
@A MyLupusTeam Member yes, on and off unfortunately, it's like someone took an axe to my neck and it accidentally got stuck. The pain is horrible. My left shoulder and arm are hurting, so are my ankles, hands, fingers - oh what the heck - everything is hurting😞and the exhaustion is severe as well
Yes ma'am. Painful is not a strong enough word to describe it. I hope you can get some relief. 💜
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