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A MyLupusTeam Member asked a question 💭
Berlin Köpenick, DE

Sle, Sjögrens, Raynauds, Factor V Leiden Mutation, APS, Cold agglutinins Disease, Cryoglobulinemia, thyroid problems etc

July 21
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A MyLupusTeam Member

@A MyLupusTeam Member thank you❤️

July 21
A MyLupusTeam Member

Call dr or go to ER

July 21
MyLupusTeam

That's a lot to carry — managing so many overlapping conditions at once is genuinely exhausting, and it makes sense that you're feeling off. Severe neck and occipital pain with your history deserves prompt attention.

With lupus, occipital neuralgia can occur when lupus-related inflammation affects the nerves or blood vessels Show Full Answer

That's a lot to carry — managing so many overlapping conditions at once is genuinely exhausting, and it makes sense that you're feeling off. Severe neck and occipital pain with your history deserves prompt attention.

With lupus, occipital neuralgia can occur when lupus-related inflammation affects the nerves or blood vessels in the neck and head area. The pain is often described as piercing, throbbing, or burning, located at the back of the scalp, and can radiate to the neck or behind the eyes. Given your complex history, there are a few important things to be aware of:

- Vasculitis (blood vessel inflammation) linked to lupus can be an indirect cause of occipital neuralgia
- Lupus-related inflammation can release abnormal antibodies that attack nerves and blood vessels
- Poorly controlled lupus can worsen neurological symptoms like these headaches and neck pain

The most important step right now is to contact your rheumatologist as soon as possible. With your combination of conditions, they'll need to evaluate whether this is neurological, vascular, or lupus-related — and coordinate with a neurologist if needed.

Please don't wait on this one. Severe neck and head pain with your history warrants urgent medical review. 💙

July 21

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