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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Alberta, Canada

Hello, a big part of my pain and disability is what they think is occipital neuralgia? It causes me severe headaches, neck pain, jaw pain and dizziness. Wondering if any others are experiencing this? I am receiving Occipital nerve blocks and a compounded cream containing lidocaine that has offerered some relief and allows me to do my physio a bit more.

November 17, 2022
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A MyLupusTeam Member

I am experiencing the same pain in my neck and shoulders as well the Dr sent me to pt with little help.I also experiencing a lot of muscle pain she wanted me to continue with the bensylsta infusions the do not help me at all

November 19, 2022

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