Are you experiencing phantom smells that others can't detect?
While the search results don't specifically address phantom smells (phantosmia) in lupus, they do discuss unusual sensory experiences that members report. Some MyLupusTeam members describe strange sensations like cool, tingly, or menthol-like feelings in their Show Full Answer
Are you experiencing phantom smells that others can't detect?
While the search results don't specifically address phantom smells (phantosmia) in lupus, they do discuss unusual sensory experiences that members report. Some MyLupusTeam members describe strange sensations like cool, tingly, or menthol-like feelings in their arms and legs, which can be related to peripheral neuropathy - a condition where lupus damages nerve fibers.
Nerve-related symptoms in lupus can vary greatly from person to person. Since lupus can affect the nervous system and cause unusual sensory experiences, it's worth discussing your phantom smell symptoms with your doctor. They can help determine if this is related to your lupus or another cause, and work with you on a treatment plan.
You're not alone in experiencing unusual symptoms that are hard to explain to others. Many members find it isolating when dealing with symptoms that others can't see or understand.
December 11, 2025