I have not been diagnosed as yet but waiting on blood results. I’ve had symptoms for 15+ years and they increased significantly in the last year and a half after having my second child after a 9 year gap. I’ve found it quite difficult this time around and I am 31. My daughter is now 2 1/2 years old.
Sylvia, I don't know all your symptoms, but fibromyalgia, hypothyroidism (underactive thyroid), and vitamin D deficiency are other conditions that can cause fatigue and pain. You may want to discuss these possibilities with your physician if they haven't tested for them. B12 deficiency can cause fatigue and neuropathy symptoms and is another possibility.
Good luck, and keep us posted. It's good news that it's not looking like lupus, though of course, your physician needs to review your results with you.
That’s exactly my point all my symptoms point to lupus and no one is listen to me. I went to another dr yesterday and she cut me off after 7 symptoms and said I can tell her the rest in 6 weeks.
Which doesn’t explain any of my symptoms 😔
I didn’t think of that. I’ve just been relying on these doctors. New test ran for ebv+ came back >150.00H waiting on more tests
Sylvia, although you have symptoms of lupus, an official diagnosis requires a whole set of symptoms, plus lab and clinical findings. I know it's frustrating for you, but it's good news that you don't have organ damage or serious issues ongoing.
Over time, the labs may confirm the diagnosis, but in the meantime, taking lupus meds without a definite diagnosis is risky for your health! Almost all suppress our immune system, making us more prone to infection.
Would you like another opinion from a university medical center if you haven't already sought one? That may be helpful, as teaching and researching doctors are often more knowledgeable than those in private practice, though not always.