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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 13
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MyLupusTeam

Are you experiencing a feeling like your insides are jumping or twitching uncontrollably?

Yes, many people with lupus experience this sensation! It's often described as involuntary muscle twitching or spasms that can feel like your body is moving on its own.

A MyLupusTeam member described it as "tiny one-time spasms over Show Full Answer

Are you experiencing a feeling like your insides are jumping or twitching uncontrollably?

Yes, many people with lupus experience this sensation! It's often described as involuntary muscle twitching or spasms that can feel like your body is moving on its own.

A MyLupusTeam member described it as "tiny one-time spasms over different parts of my calves, ankles, and thighs." Another shared, "One of my lupus symptoms has been uncontrollable muscle twitching in my legs, arms, and torso. It doesn't hurt, but it's bothersome when you're trying to rest or sleep."

This type of involuntary muscle movement is called myoclonus or myoclonic jerks. It can happen:
* In different body parts (legs, arms, stomach, torso)
* At random times or in the same location repeatedly
* More frequently when you're stressed or during a lupus flare
* Especially when you're trying to relax or sleep

One member mentioned, "My body starts jerking when relaxed or going to sleep, and it wakes me up." Another noted it was "like being kicked by the baby when I was pregnant."

If this is new for you or getting worse, it's worth mentioning to your doctor, especially if it's disrupting your sleep or daily activities.

January 13
A MyLupusTeam Member
January 13

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