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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Gwynn Oak, MD

I've had lupus for 5.5 years and I haven't had any significant problems. But now it's trying to take my hair. What can I do to reverse it]?

January 16
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A MyLupusTeam Member

Okay thank you, but when you say lupus activity is controlled what does that mean?

January 16
MyLupusTeam

Can hair grow back from lupus-related bald spots?

Whether hair can grow back depends on the type of hair loss you're experiencing. If you have nonscarring alopecia (often associated with systemic lupus), there's good news—the hair follicles aren't destroyed, so regrowth is possible once lupus activity is controlled.

However Show Full Answer

Can hair grow back from lupus-related bald spots?

Whether hair can grow back depends on the type of hair loss you're experiencing. If you have nonscarring alopecia (often associated with systemic lupus), there's good news—the hair follicles aren't destroyed, so regrowth is possible once lupus activity is controlled.

However, if you have discoid lupus lesions on your scalp that have scarred, those specific areas may experience permanent hair loss because the follicles are destroyed. The key is getting treatment early before scarring occurs. What can you do to help reverse it?

The most important step is getting your lupus under control first. Here are treatment options to discuss with your doctor:

* Topical or injectable steroids to reduce inflammation and promote hair growth
* Medications like mycophenolate to control disease activity and improve skin symptoms
* DHEA (as a prescription, not over-the-counter)

Some MyLupusTeam members have found success with biotin (vitamin B7) supplements and folic acid, though you should check with your doctor before starting any supplements.

To protect your remaining hair:
* Use gentle products like baby shampoo
* Avoid hot styling tools and harsh chemicals
* Keep hairstyles loose
* Limit sun exposure with hats or scarves

Talk to your doctor soon about your hair loss—early treatment gives you the best chance for regrowth.

January 16

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