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What do I have to do to minimize any harm or dangerous symptoms?
Does anyone have cryoglobulinemia, and what symptoms do you experience? Do lupus patients have this more often than healthy individuals?
The search results provided don't contain specific information about cryoglobulinemia in lupus patients. However, lupus does affect blood cells and can cause various blood-related Show Full Answer
Natasha, cryoglobulinemia can occur with lupus and Sjogren's (as well as with other conditions), and the symptoms can include rashes, fatigue, joint and muscle pain, kidney disease, and neuropathy. The term refers to immunoglobulins that solidify at cold temperatures, thereby reducing blood flow to tissues.
The treatment is aimed at controlling lupus, and there's no other specific treatment. Please try not to be overly alarmed, as it doesn't change what you have to do — take excellent care of yourself. I hope you soon find a rheumatologist who listens and takes care of you.😘
Love you. He answers and thanks again for always helping me.
I don't know what's wrong again, my answer has vanished😡or I get logged out without my knowledge. It's not cool at all if you had a lot to say and can't find or retrieve your answer
Thank you Natasha and @A MyLupusTeam Member. This helps explain some of my symptoms when I encounter cold weather. I flare if I am not properly covered. Although now since starting the medications its small I still do it. I have all the symptoms that Niranjana shared except the kidney problem and I think I don't have that involvment yet because I maintain a tight control over my sugars and drink lots of water which lowers my sugar. (it also diuresis me which makes my Lupus act up). So like my Rheumy told me I walk a tight rope. Thank you Natasha and Niranjana this explains a lot for me. God bless.
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