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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone developed side effects from Benlysta after being on it for awhile? It may be symptoms of my other autoimmune diseases.

A MyLupusTeam Member asked a question 💭
February 10
 · 
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A MyLupusTeam Member

No, I haven't. I have been taking it for two years with no issues. We all react to medications differently. Please remember to mention any new issues to your doctor, especially if it is persistent.💜

February 10
MyLupusTeam

Have you developed side effects from Benlysta after being on it for a while?

Yes, some people do experience side effects from Benlysta even after being on it for some time. Since you mentioned other autoimmune diseases, it's important to focus on lupus-related effects, as Benlysta is specifically used to treat lupus.

Common Show Full Answer

Have you developed side effects from Benlysta after being on it for a while?

Yes, some people do experience side effects from Benlysta even after being on it for some time. Since you mentioned other autoimmune diseases, it's important to focus on lupus-related effects, as Benlysta is specifically used to treat lupus.

Common side effects that MyLupusTeam members have reported include:

- Fatigue and exhaustion (sometimes lasting days after infusions or injections)
- Pain in the arms and legs
- Skin changes
- Joint pain

One MyLupusTeam member shared: "The Benlysta injections increase fatigue for me, but I am also seeing results. I am starting to have more good days. I have seen positive skin and joint changes too."

Another member noted that infusions would wipe them out: "The day I would get infusions, I would have to sleep it off all day."

It's crucial to let your doctor know if you're experiencing new or worsening side effects. They can help determine whether these symptoms are from Benlysta, lupus activity, or need a treatment adjustment. Never stop taking medication without consulting your healthcare provider first.

February 10
A MyLupusTeam Member

Thank you for the hug. I'm sending one back.

February 11
A MyLupusTeam Member

Thank you. It really worked well for a year or so. I know we are all different, but I just wondered if anyone else has experienced side effects so long into treatment. My doctor is temporarily holding the medication.

February 10

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