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Do any of you experience extreme cold intolerance? As if you have nothing protecting your bones. I suffer daily!

A MyLupusTeam Member asked a question 💭
Fort Worth, TX
February 19
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A MyLupusTeam Member

I have a spinal fusion and my hardware gets cold when the weather is cold. My body goes into a nonstop shiver sometimes which makes body pain even worse. Best solutions for me have been a hot shower/bath or a sauna if you can access one and my favorite an infrared pad that will actually warm my whole body unlike a heating pad that only warms the surface of my skin.

February 22
A MyLupusTeam Member

Yes, I have Raynaud's myself with chronic vascular inflammation only thing that really helps me is our hot tub. Or even just a hot bath

February 19
A MyLupusTeam Member

I do have Raynaud's Phenomenon but still haven't felt this cold all over my body. It's getting worse.

February 19
MyLupusTeam

Why might you be experiencing extreme cold intolerance and bone sensitivity with lupus?

Cold intolerance with lupus can happen for several reasons. Cold temperatures can cause blood vessels to narrow, which may worsen symptoms or trigger painful flare-ups as your body tries to stay warm.

Raynaud's phenomenon is common in Show Full Answer

Why might you be experiencing extreme cold intolerance and bone sensitivity with lupus?

Cold intolerance with lupus can happen for several reasons. Cold temperatures can cause blood vessels to narrow, which may worsen symptoms or trigger painful flare-ups as your body tries to stay warm.

Raynaud's phenomenon is common in people with lupus — up to one-third may experience it. This condition causes blood vessels in your fingers and toes to constrict, reducing blood flow and making you especially sensitive to cold. You might notice fingertips turning white or blue when exposed to cold.

Hypothyroidism (underactive thyroid) affects about 15-19% of people with lupus and can cause chills or feeling cold. It slows your metabolism and changes your hormonal balance.

Bone sensitivity in lupus often relates to:
- Inflammation caused by lupus itself
- Long-term corticosteroid use, which increases bone loss risk
- Osteoporosis, which affects 24-74% of people with lupus
- Reduced blood flow to bones (avascular necrosis)

What might help:
- Warm up gradually with gloves, socks, or warm (not hot) water
- Talk with your doctor about monitoring bone density
- Discuss calcium and vitamin D supplements
- Consider whether corticosteroid adjustments are possible

If symptoms are persistent or bothersome, speak with your rheumatologist about adjusting your treatment plan.

February 19

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