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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭

Hi everyone! I was diagnosed with BSLE in October of 2025.

March 10
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How rare is Bullous Systemic Lupus Erythematosus (BSLE)?

Unfortunately, the search results don't contain specific information about BSLE or its rarity. BSLE is a distinct manifestation of lupus that affects the skin with blister formation, but detailed statistics about how common it is weren't available in the provided Show Full Answer

How rare is Bullous Systemic Lupus Erythematosus (BSLE)?

Unfortunately, the search results don't contain specific information about BSLE or its rarity. BSLE is a distinct manifestation of lupus that affects the skin with blister formation, but detailed statistics about how common it is weren't available in the provided information.

What we do know is that systemic lupus erythematosus (SLE) itself affects between 0.05% and 0.1% of the U.S. population, meaning around 165,000 to 330,000 people have SLE. BSLE would be a subset of those with SLE, making it even less common.

Getting a diagnosis can be challenging since lupus symptoms vary widely from person to person. A MyLupusTeam member shared: "I am 31 and started with many different undiagnosable/misdiagnosed symptoms when I was a child. It took them until this January to figure out it was lupus."

If you're looking for more specific information about BSLE, it would be worth discussing with your rheumatologist or dermatologist, as they can provide more detailed information about this particular manifestation of lupus.

March 10

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