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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does it come to the point where you have to have a caretaker

A MyLupusTeam Member asked a question 💭
Reno, NV
April 8
 · 
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MyLupusTeam

Does lupus progression require having a caretaker?

Whether you'll need a caretaker depends on how lupus affects you individually. Some people with lupus manage independently throughout their lives, while others may need varying levels of support during flares or if complications develop.

Lupus symptoms like fatigue, brain Show Full Answer

Does lupus progression require having a caretaker?

Whether you'll need a caretaker depends on how lupus affects you individually. Some people with lupus manage independently throughout their lives, while others may need varying levels of support during flares or if complications develop.

Lupus symptoms like fatigue, brain fog, and physical limitations can make daily tasks challenging. Many people find themselves needing help with:

- Household chores like cleaning and cooking
- Attending medical appointments
- Managing medications
- Remembering important tasks

Some MyLupusTeam members worry about becoming a burden on loved ones. One member mentioned concerns about their partner becoming a "caretaker/nurse/therapist," while others try to downplay symptoms to avoid worrying family.

The need for assistance often fluctuates. You might manage well most days but need support during flares or when dealing with complications like kidney involvement.

Rather than formal caretaking, many people rely on support from family and friends who help without making them feel like an inconvenience. Being open with loved ones about your needs and accepting offered help can make a significant difference.

If you're concerned about needing more support, discuss this with your rheumatologist. They can help you plan ahead and connect you with resources that might help you maintain independence longer.

April 8
A MyLupusTeam Member

I want to keep my Independence as long as I can. That's going to be hard to give up if I ever have to big hugs

April 8
A MyLupusTeam Member

I’m 77 had at times had some help with house chores for the most part I’m independent

April 8
A MyLupusTeam Member

I have Lupus and autoimmune hepatitis I actually have 37 things wrong with me. And it's getting worse.

April 8
A MyLupusTeam Member
April 8

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