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Every time I get sick it’s already so hard for my body to fight it off and I’m scared of making it worse. My kids get me sick often and with all the viruses going around I’m afraid I could get sick and not get better if I take this medicine.

April 8
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Are immunosuppressants the only treatment option for lupus?

Your fear about immune-suppressing medications is completely understandable, especially when you're already dealing with frequent infections. It's true that immunosuppressants are commonly used to treat lupus because they help stop your immune system from attacking Show Full Answer

Are immunosuppressants the only treatment option for lupus?

Your fear about immune-suppressing medications is completely understandable, especially when you're already dealing with frequent infections. It's true that immunosuppressants are commonly used to treat lupus because they help stop your immune system from attacking healthy tissue. However, the reality is that lupus itself already affects your immune system's ability to protect you from germs.

With lupus, your overactive immune cells make antibodies that can actually attack your immune system, leaving it less able to fight off infections even without medication. People with lupus develop infections two to six times more often than those without the condition, and up to half are hospitalized for a serious infection at some point.

This is a conversation you really need to have with your rheumatologist. They can discuss:

* Different medication options and dosages
* Your specific infection risk factors
* Ways to protect yourself while on treatment
* The risks of leaving lupus untreated versus treating it

Untreated lupus can cause serious organ damage over time, which could make you even more vulnerable to infections and other complications. How can you protect yourself from infections?

If you do start immunosuppressive treatment, there are practical steps to reduce your infection risk:

* Stay up to date with vaccines (flu shots, COVID-19 vaccines, and others your doctor recommends)
* Wear a mask in crowded indoor spaces or around people who might be sick
* See your doctor right away if you develop a fever over 100°F
* Practice good hand hygiene, especially with kids at home

Many people with lupus successfully manage their condition with immunosuppressive medications while taking precautions against infections. Your doctor can also prescribe antibiotics quickly if you do get sick, which is especially important for people with lupus.

This is a big decision that deserves a thorough discussion with your healthcare team about your specific situation, medication options, and how to balance treating your lupus while minimizing infection risk.

April 8

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