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A MyLupusTeam Member asked a question 💭
Omaha, NE

I know for me getting showered, dressed, doing my hair and make up uses a lot of my energy so most days I omit these things.

But getting prettied up, feeling good in a cute outfit is a total mood boost.

Curious who can relate and how you choose to utilize your limited energy.

April 27
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Answer Summary

Members connected warmly over how they manage their limited energy, known as 'spoons,' while still finding ways to feel good about themselves.... Read more

Members connected warmly over how they manage their limited energy, known as 'spoons,' while still finding ways to feel good about themselves. Several members shared creative strategies like breaking tasks into shifts, doing things in stages with rest in between, and using small mood-boosting rituals like a favorite perfume, a morning devotional, or even getting dressed just to nap. A recurring theme was self-compassion, with many members embracing the idea that looking and feeling their best, in whatever way works for their body that day, is a valid and important part of living with lupus.

A MyLupusTeam Member

@A MyLupusTeam Member Thanks for bringing this up. I spend the first hour of the day doing my devotionals, sipping my tea while watching the Today Show, no matter what is on my to-do list. As a rule, I do not watch the national or local news portion of the morning shows - it's a mental health spoiler. This relaxes me and energizes me at the same time. Breaks between activities are essential. If I have pain, I address it accordingly. For example, this morning, my feet hurt badly and felt numb. So, I soaked them in Dr. Teal's Epsom salt and massaged them with urea cream and castor oil. This enabled me to get some vacuuming done. I took a break and then vacuumed another room. As for getting prettied up, if I have plans to leave the house, absolutely. I don't wear makeup, but I do like to look put together. I think pacing ourselves makes a big difference in how we reserve our spoons for more challenging activities or long days.

April 27 (edited)
A MyLupusTeam Member

First off, I just want to mention how much you mean to me in this crazy lupus journey @A MyLupusTeam Member. You are so giving, so beautiful, so inspiring. You don't need to pretty yourself up because you're already there. You are already beautiful beyond words. That said, I know what you mean. It's confidence. It's -I own this space. It's I'm still valid and normal and all the other 'it's' that life comes up with. Truth: I cannot wear eye makeup. At all, really. When I try, it is several days of regret. But, even without face paint that I used to rely on in my younger, cuter, healthier days, I've reimagined myself as a fierce middle-aged warrior who wears braids, and indulges my Bohemian tendencies. It's not where I imagined I would be, but it is still ME. Where I am right now. And maybe recognizing where you are right now will help in a small sense. I am sending you the biggest, friendliest, fiercest hugs because I truly do know where you are.

May 2
A MyLupusTeam Member

Sometimes I get dressed to nap!

April 28
MyLupusTeam

So many MyLupusTeam members can absolutely relate to this! The spoon theory struggle is real, and you're not alone in weighing the cost of self-care against the joy it brings. That mood boost from feeling put-together? Totally valid and worth factoring in.

Here's how some members navigate their energy wisely:

- On low-energy Show Full Answer

So many MyLupusTeam members can absolutely relate to this! The spoon theory struggle is real, and you're not alone in weighing the cost of self-care against the joy it brings. That mood boost from feeling put-together? Totally valid and worth factoring in.

Here's how some members navigate their energy wisely:

- On low-energy days, baby wipes or cleansing foam for essential areas can replace a full shower
- Sitting down while doing hair, makeup, or other tasks saves energy for legs and lower back
- Choosing one "feel good" activity per day and letting other things slide
- Prepping outfits or beauty items in advance so less effort is needed in the moment
- Listening closely to what the body says each day, since limits can vary

One MyLupusTeam member put it beautifully — learning their physical limits and respecting that those limits change day to day has been huge in managing symptoms while still living life. The key takeaway is to go easy on yourself on the tough days, and on the days you have a little extra energy, enjoy every moment of that cute outfit! 💅

April 27
A MyLupusTeam Member

Thanks gang, just nice to know what other lupus warriors can or do on the regular.🥰

April 29

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