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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What can I expect from my first rheumatologist appointment?

A MyLupusTeam Member asked a question 💭
Richmond, VA

Was diagnosed with Chilblains lupus in January of this year. My blood work came back as positive for lupus. This type of Lupus is skin related/connective tissue lupus. My dermatologist put me on hydroxychloroquine 200 mg twice a day. Wondering on what to expect during my first appointment on 5/5.
Thanks for listening.

April 29
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A MyLupusTeam Member

The doctor will review your medical history with you. They might ask you if you are having any of the typical symptoms of lupus, also known as the 11 criteria for lupus. They will order lab work, and you may or may not be prescribed medication on that day or after your lab results come in. Please remember to bring a list of things you would like to discuss with the doctor and your questions. The first visit is usually the longest, so take advantage of that extra time. If someone close to you is available on your appointment day, it will help to bring them along. They can help fill in the blanks if you miss something the doctor says and can also tell the doctor how they see the changes in your health. Please let us know how your appointment goes.

April 29
MyLupusTeam

First of all, congratulations on taking this important step — getting to a rheumatologist is a big deal! Since this will be their first time seeing you, expect them to take a thorough medical history and possibly order additional tests or bloodwork to get a full picture of where things stand.

Here's what to generally expect:

Show Full Answer

First of all, congratulations on taking this important step — getting to a rheumatologist is a big deal! Since this will be their first time seeing you, expect them to take a thorough medical history and possibly order additional tests or bloodwork to get a full picture of where things stand.

Here's what to generally expect:

- A review of your current diagnosis and medications, including your hydroxychloroquine
- Discussion of your symptoms and how they've been affecting daily life
- Possible additional lab work or monitoring
- A conversation about what the coming weeks and months may look like
- Guidance on what symptoms to watch for or report

It's completely normal if everything isn't fully sorted in one visit — lupus can take time to fully assess and manage. Coming prepared will make the appointment much more productive. Consider bringing:

- A list of your current symptoms and when they started
- Your current medications (including the hydroxychloroquine dosage your dermatologist prescribed)
- A written list of questions and concerns
- A trusted friend or family member for support and to help remember details

Some great questions to ask include things like what to expect from your current medication, how often you'll need follow-ups, and what warning signs to watch for.

Don't leave without scheduling your next appointment — early on, rheumatologists often like to check in every four to six weeks to track how things are going. You've got this! 💙

April 29

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