Consider getting a second opinion to be certain. You know your body and our labs don't always match the way we feel. One time my doctor put me in the hospital immediately after an appointment when I swore that I felt well. At that time, he did the right thing. I was flaring and was in the hospital for a week. Another time I felt bad, but my labs were good. This is an unpredictable disease. Each rheumatologist determines things differently. Please keep us updated.

I have had it happen. My doctor diagnosed me at age 35 with lupus. He retired when I was 54 I think. The next Dr said he didn’t think I had lupus. He knows I have a connective tissue disease but maybe not lupus. He left everything the same as far as medication and didn’t change on my medical records. By the time he retired and when I was around 59 the latest rheumatologist changed my records to undifferentiated connective tissue disease. I take this as good news since it’s not progressed significantly in 25+ years. But I feel worse than ever. I think lowering my dose of hydroxychloquine based on weight has negatively affected me. 2 pills a day worked much better for me. So long story short, I doctor can make an incorrect call with this disease, one way or the other. It doesn’t mean you don’t have an autoimmune condition. Maybe just not full blown lupus.

Oh, I know, but it's been a year that I have been with this doctor and I still don't feel comfortable with him. He doesn't seem to be thorough. He ask basic questions, and jokingly I said I should stop ALL of my mads and he said that sounds like a great idea. I told him I was kidding and he said he wasn't. The more I think about it, I don't feel comfortable stopping some of these all at once.