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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Wesley Chapel, FL
May 3
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A MyLupusTeam Member

Yes, it's more like I end up in the hospital. My muscles act like I have never moved in my life. The spasms,the pain and the recovery make it a chore than something beautiful between two people. It's sad, and I have tried I think almost everything from pillows to different positions. All I can say is sometimes it doesn't have to include penetration. I say listen to your body and don't be embarrassed to talk to your wife,husband or partner about what's is going on and how you feel about it. We are to old to be embarrassed but people still are so approach the matter how YOU feel but also take your wife,husband or partners attitude about the subject into consideration. Some people are just not comfortable speaking on this subject even to their husband, wife or partner.

May 3
MyLupusTeam

Yes, this is something others with lupus have experienced. Flare-ups can be triggered by physical exertion, and sexual activity is no exception. The body's response to physical stress can activate the immune system in ways that may spark a flare.

A few key factors that might connect sexual activity to flares include:

- Show Full Answer

Yes, this is something others with lupus have experienced. Flare-ups can be triggered by physical exertion, and sexual activity is no exception. The body's response to physical stress can activate the immune system in ways that may spark a flare.

A few key factors that might connect sexual activity to flares include:

- Physical exertion — Any activity that tires the body can be a trigger
- Hormonal shifts — Hormones fluctuate during and after sexual activity, and hormonal changes are a known lupus flare trigger
- Emotional stress — Intimacy can sometimes bring emotional ups and downs, and stress is a well-known flare trigger
- Sleep disruption — If activity affects sleep quality, fatigue can follow, which may worsen symptoms

It's worth tracking when flares occur in relation to activities to help identify personal patterns. Sharing this with a rheumatologist can help adjust a management plan if needed.

Rest and pacing are important — listening to the body and not pushing through exhaustion can make a real difference. It doesn't mean giving up intimacy, but finding what works best for individual energy levels and timing.

May 3
A MyLupusTeam Member

I am so sorry that you all are experiencing this. Please reach out to your rheumatologist and or ob-gyn doctor.

May 3

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