Two years ago I had a severe flare up in my left leg. The pain was the worst I’d ever felt by a long shot. I had to be taken to hospital by ambulance as I could not lift my foot off the floor at all without screaming. They gave me two shots of morphine just to get me in the ambulance and another in the ambulance on the way. I was still sobbing uncontrollably from pain so they gave me two doses of fentanyl at the hospital and I was able to get myself under control enough to answer questions but I… read more
Monika, I'm sorry to hear you went through such a horrible experience, and I'm glad you've improved as much as you have. Yes, our flares can affect different organ systems, and I've experienced this a few times, too, with pain preceding major issues.
I suggest asking your doctor to refer you to a speech therapist, as they work with swallowing issues, too. They may be able to help with the gag reflex issue, and an ENT may also have insight. The therapist is more likely to give you the practical training those muscles need. Good luck, and please keep us posted!
Lupus can be a connector absolutely, it takes a dedicated health team to truly research it
First of all, that flare sounds absolutely harrowing — the level of pain you endured was clearly extraordinary, and it makes complete sense that something that severe could leave lasting effects on your body.
To answer your question: yes, it is very possible these symptoms are connected. Lupus can cause inflammation that Show Full Answer