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He is expected to be on at least MMF for a year and he's just about to start another (might be Voclosporin). He is currently masking in public and we have pretty strict rules at home to keep germs down so he can rest a little easier in his home. For others that stay on these meds, do they do this indefinitely? That's okay, I just wonder why I see that some choose not to.
Before COVID, I did not mask routinely, although I was on MMF and steroids. I masked in very crowded places (like Costco) and kept a mask with me in public to put on immediately if anyone coughed around me.
COVID is so incredibly contagious that I have increased my masking precautions and mask and/or distance everywhere. COVID is still causing hospitalization and death in the immunocompromised, elderly, and some with serious underlying conditions. A friend with lupus died of it just two years ago after letting up on her precautions. Unfortunately, the virus's constant mutations make it harder to fight, so precautions are our best defense. Those of us with major organ disease (like me) are at higher risk.
The CDC recommends fall and spring boosters for the immunosuppressed and elderly (over 65).
I wear a mask only if I’m going in to like a hospital or a doctors office or maybe if I’m visiting someone who is sick but when my Lupus is in remission, I don’t wear it but it all depends on how bad your Lupus symptoms are I believe at least that’s what I’ve been hearing sending healing. Prayers to your husband.💜
Thank you @A MyLupusTeam Member and @A MyLupusTeam Member
It is helpful to know what works for others or what advice you get from your healthcare team.
Note: He did talk to his specialty pharmacist today; he said the biggest concern right now is the high amount of Prednisone. Once he maxes out on MMF and Voclosporin, then we will revisit his needs concerning masks, etc. I thought that was a fair assessment.
What a thoughtful and caring question — it's clear how much effort goes into supporting your husband's health at home.
Yes, as long as he remains on immunosuppressants like MMF or Voclosporin, continuing infection precautions is genuinely important. These medications suppress the immune system to help manage lupus, but that Show Full Answer
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