I can't take steroids. Makes me GI bleed and all it did was hype me up and make me feel like I didn't have Lupus and make my sugar go sky high. I had to do diet. Which is very difficult to do. I had to pray unceasingly. I had to eat a lot of ginger,count carbs, daily weight, daily blood sugar and take tumeric with the diet. The ginger helps suppress the appeitie. They put me on myfortic and and I had to stop the ginger as the myfortic was upsetting my stomach with the ginger and myfortic suppresses my appeitie. Prayer was the only way I made it through it and being obeidiant with the diet. No meat, no sweets, no bread. Veggies, veggies, veggies. soothing, soothing, soothing to my joints. God bless, I am praying for you.

I've heard of it but haven't used it; I took azathioprine and got sick so now just taking benlysta and prednisone until we can create a better treatment plan after more lab work. This week I missed a benlysta treatment and I feel it.

I almost died 3 x's in 2024-2025. I used this to guide me with diet and MyLupusTeam gave it to me. The doctor's didn't. MyLupusTeam saved my life. I was sooo scared and that kept making things worse. Now I learned to pray and let God handle it. He is my steroid.
This was on MyLupus Team:
What are foods and drinks to avoid with lupus?
For individuals with lupus, certain foods and drinks should be avoided to help manage symptoms and prevent flare-ups:

Foods to Avoid:
- Garlic: May strengthen the immune system, potentially worsening lupus symptoms.
- Alfalfa Sprouts: Contain a protein that may promote inflammation.
- Processed Foods: Often high in unhealthy fats and sugars, which can increase inflammation.
- Sugary Foods and Beverages: Can contribute to inflammation and other health issues.
- Fatty Foods, Especially Red Meat: High in saturated fats, which can increase inflammation.

Drinks to Avoid:
- Alcohol: Can interact dangerously with lupus medications, such as:
- Prednisone: Increases the risk of gastrointestinal bleeding.
- NSAIDs (e.g., aspirin, ibuprofen, naproxen): Can cause dangerous bleeds when mixed with alcohol.
- Liver-Metabolized Medications (e.g., leflunomide, mycophenolate mofetil, methotrexate): Can cause permanent liver damage and cirrhosis when combined with alcohol.

Additional Considerations:
- High Salt Intake: Should be minimized, especially for those with high blood pressure, to avoid serious complications.

Recommendations:
- Keep a Food Journal: Track what you eat and how you feel to identify any foods that may trigger inflammation or flare-ups.
- Consult with Healthcare Providers: Work with your doctor or a registered dietitian to ensure your diet meets your needs and avoids potential triggers.

By avoiding these foods and drinks, individuals with lupus can better manage their symptoms and reduce the risk of flare-ups.

Mia Butler
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PBP/GINFWMY