I've had tremors in my hands mostly
May 28
Yes I get that to this disease really sucks
May 27
Yes, shaking and tremors can absolutely be part of living with lupus. Tremors are involuntary, rhythmic muscle movements that can affect the hands, arms, legs, or even the whole body. They can range from barely noticeable to quite disruptive in daily life. Many MyLupusTeam members have shared their experiences with this Show Full Answer
Yes, shaking and tremors can absolutely be part of living with lupus. Tremors are involuntary, rhythmic muscle movements that can affect the hands, arms, legs, or even the whole body. They can range from barely noticeable to quite disruptive in daily life. Many MyLupusTeam members have shared their experiences with this. One member described it as: "The tremors in my hands shake like I've drunk 10 cups of coffee." Another shared that they feel it more like an internal vibration that others can't see from the outside. There are a few reasons why lupus can cause shaking:
- Neurological involvement – Lupus can affect the nervous system, and when autoantibodies attack nerve cells in the brain that control movement, tremors can result.
- Lupus flares – Many people notice their shaking gets worse during a flare-up.
- Fatigue – Tremors often appear or worsen when feeling especially run-down or exhausted.
- Medications – Some common lupus medications like corticosteroids, hydroxychloroquine (Plaquenil), cyclosporine, and mycophenolate mofetil (CellCept) can cause tremors as a side effect.
- Thyroid involvement – People with lupus have a higher risk of thyroid issues, which can also cause shaking. It's always worth mentioning tremors to a doctor or rheumatologist, especially if they are new, getting worse, or started after a medication change. Finding the cause can help find the right way to manage them.
May 27
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