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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 3
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MyLupusTeam

That feeling of being hungry but completely turned off by food is actually really common with lupus — you're definitely not alone in this!

Loss of appetite is a recognized symptom of lupus itself, and several factors can contribute to it, including:

- Medications like hydroxychloroquine (Plaquenil) or prednisone
- Mouth Show Full Answer

That feeling of being hungry but completely turned off by food is actually really common with lupus — you're definitely not alone in this!

Loss of appetite is a recognized symptom of lupus itself, and several factors can contribute to it, including:

- Medications like hydroxychloroquine (Plaquenil) or prednisone
- Mouth ulcers, which affect about 25% of people with lupus and can make eating uncomfortable
- Depression or anxiety, which are common with lupus and can dampen interest in food
- Fatigue, which can make even the idea of preparing or eating food feel overwhelming
- Gastrointestinal issues like stomach pain or peptic ulcers from lupus treatments A MyLupusTeam member described it perfectly: "I get hunger pangs, and my body feels hungry, but I have no appetite. It's not that I'm restraining myself from eating. I just don't feel like I want to eat."

Some helpful strategies include eating smaller, more frequent meals, focusing on nutrient-dense foods, and keeping a symptom journal to track patterns. It's worth mentioning this to your doctor, especially if it's affecting your weight or energy levels.

June 3
A MyLupusTeam Member

That’s exactly how I feel
I’ll even go to the kitchen look around for something and nothing looks good. Even my go to stuff like fresh fruit or vegetables. Then I go back to bed and forget about it. Next thing I know it’s in the middle of the night and I’ve not eaten anything all day and the only thing that I have drank all day is when I took my meds. I truly can’t keep going on like this.

June 4

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