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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is everyone keeping up with dental exams? They're critical for us!

A MyLupusTeam Member asked a question 💭
Pittsboro, NC

Every six months, dental exams are a must, especially for those of us with kidney disease and/or immunosuppression (any medication other than HCQ). Our chronic inflammation makes us more prone to dental/periodontal disease, which then impacts our overall health. @A MyLupusTeam Member shared some recent research showing that our kidney function deteriorates more rapidly in the presence of dental problems. Thanks, MrsV!

June 10
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Answer Summary

Members connected over the importance of dental care for those living with lupus, kidney disease, Sjogren's, and other chronic conditions,... Read more

Members connected over the importance of dental care for those living with lupus, kidney disease, Sjogren's, and other chronic conditions, sharing how their illnesses have led to serious and costly dental issues. Several members described painful experiences including infections, tooth loss, root canals, and sensitivity, while others shared tips like getting supplemental dental insurance through providers such as Physicians Mutual to help offset high costs. A recurring theme was the challenge of finding accepting, accessible dental care, with some members facing discrimination due to their diagnosis or use of a wheelchair.

A MyLupusTeam Member

I do my best, twice a year but dental coverage gets pretty bad when you go on Medicare.

June 10
MyLupusTeam

What a great reminder! Regular dental care is genuinely important for people with lupus, and the connection to overall health is very real.

Research shows that people with lupus are significantly more prone to:

- Tooth decay — studies suggest up to 87% of people with lupus experience cavities
- Gum (periodontal) disease — Show Full Answer

What a great reminder! Regular dental care is genuinely important for people with lupus, and the connection to overall health is very real.

Research shows that people with lupus are significantly more prone to:

- Tooth decay — studies suggest up to 87% of people with lupus experience cavities
- Gum (periodontal) disease — inflammation and immune dysfunction make gums more vulnerable
- Mouth sores — affecting around 40% of people with lupus
- Dry mouth — which further accelerates tooth decay If you're on immunosuppressive medications, your infection risk after dental work is higher, so always loop in your rheumatologist before any procedure. Some medications may need to be temporarily adjusted beforehand — never stop them without guidance though.

Also, don't forget to mention photosensitivity to your dentist — sunglasses under that bright dental lamp are completely acceptable! 😎

As a MyLupusTeam member once shared, *"Check with your rheumatologist, and see if it makes any difference. It all depends on what you're on."* Wise words!

June 10
A MyLupusTeam Member

I strongly suggest getting dental insurance. It won't cover everything, but it will definitely make a difference. I got dental insurance and it has saved me thousands of dollars in the past year.

June 12
A MyLupusTeam Member

Also for anyone with Sjogren's disease it is critical to go frequently I was just at the dentist 2 months ago X-rays were taken I went in today with a loose cap they x-rayed and what bottom teeth I have on the right side of my mouth are all infected underneath the skin and headed to the Bone. Antibiotics will be started ASAP and then they will have to surgically remove what teeth are left there as they were all caps. Sjogren's disease due to the lack of saliva in your mouth causes a buildup of bacteria among other things and Decay is imminent no matter how many times you brush your teeth use mouthwash Etc. Eventually it gets you as it's now getting me.

June 10
A MyLupusTeam Member

Physicians Mutual only covers preventive care for the first year. After the first year, they cover 70% for the doctors in the plan and 40% for doctors not in the plan. I have had so much dental work lately, I am so grateful I have it. I think I have Sjogren's, and that is what is causing some of the problems.

June 28

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