MyLupusTeam

This is such an important question, and it's completely understandable to be concerned after 26+ years on Plaquenil (hydroxychloroquine).

Unfortunately, retinal damage caused by long-term hydroxychloroquine use is generally considered permanent and not reversible. This is why early detection through regular eye exams is so Show Full Answer

This is such an important question, and it's completely understandable to be concerned after 26+ years on Plaquenil (hydroxychloroquine).

Unfortunately, retinal damage caused by long-term hydroxychloroquine use is generally considered permanent and not reversible. This is why early detection through regular eye exams is so critical — catching changes early can help prevent further damage. Given your long history with Plaquenil, here are some important steps to discuss with your doctor:

- Stop or adjust the medication — If retinal damage is detected, your eye doctor or rheumatologist may recommend stopping hydroxychloroquine
- Regular monitoring — Seeing a retinal specialist (retinologist) frequently, such as every 6 months, can help track any changes
- Baseline and ongoing eye exams — The American Academy of Ophthalmology recommends annual comprehensive eye exams for anyone who has been on hydroxychloroquine for more than 5 years

The longer someone takes hydroxychloroquine, the higher the risk of retinal damage — so at 26+ years, staying closely monitored by an eye specialist is especially important. Please bring this up with both your rheumatologist and eye doctor as soon as possible.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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