Neither do they - lol!

I’m so sorry for what you are going through! I haven’t used steroids, so I am not sure about that …but my issues have been helped by a combination of starting iron (ferritin low) and low dose estrogen (perimenopausal). Low iron can cause neuropathy I believe . I’ve discovered that several of my “lupus” symptoms have been helped by the combo. Plus I went off sugar four years ago ,,, that made the single biggest shift in my health when my body ‘broke’

No easy answers :/ but for me going through perimenopause seems to have activated my lupus in some way 🤷‍♀️

So far my conclusion is to hit it at all levels , no sugar, hydrate, (I personally don’t do caffeine or alcohol). Rest , don’t push myself, steady pace test vit B, D, iron (full panel, thyroid, etc) . I take magnesium and inositol (love inositol) at night

All angles all the time , and always expect to have to keep adjusting lol 😂

Pray you find a combination that gives you relief 🙏🙏🙏

I hope you do find out what it is Donna! My rheumatologist says my neuropathy is not from lupus and my neurologist says it is. I have no idea

Frankie, do you know that Lupus has caused your neuropathy? I just syaryed with numbness, tingling, and weakness in my legs just from the knees down. My Dr. prescribed gabapentin. It hasn’t really helped yet. But I have a very degenerated back, so I had an MRI which showed no significant change in my spine. I also had a total knee replacement 4 weeks before these leg symptoms began. So I don’t know what has caused this. I am basically unable to walk without a walker which I didn’t need before my surgery. I am going to see another neurologist. I need to find the cause of this condition! I hope you can get answers too!💕💗