It sounds like you may be referring to systemic lupus erythematosus (SLE) with related complications. Getting the right resources in place is a great step forward!
Here are some key resources worth exploring:
- Disability benefits – If lupus is affecting your ability to work, you may qualify for disability benefits through Show Full Answer
It sounds like you may be referring to systemic lupus erythematosus (SLE) with related complications. Getting the right resources in place is a great step forward!
Here are some key resources worth exploring:
- Disability benefits – If lupus is affecting your ability to work, you may qualify for disability benefits through programs like Social Security Disability Insurance (SSDI)
- Medicare or Medicaid – Health insurance assistance may be available depending on your income and situation
- Social worker support – A social worker connected to your rheumatology team can help guide you through available programs
- Patient portals or apps – Using your medical provider's app to message your doctor creates a helpful paper trail of your symptoms and concerns
- Support groups – Local in-person or online groups can connect you with others who've navigated similar resources
Talking directly with your rheumatologist or a social worker is the best first step — they can point you toward programs specific to your location and needs.
June 25