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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Atlanta, GA

I went to a therapist to help me manage my symptoms/flares and stress related to having lupus. She claimed to be involved in lupus awareness and advocacy & be knowledgeable. But after 1 session discussing some concerns, she acted like she 'solved' the problem. Obviously its an ongoing chronic issue, but she was trying to shut down any discussion of lupus after then. She'd say "We already discussed that. Why are you dwelling on it?" And then, pushed to switch topics. Obviously I dont want to… read more

June 27
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A MyLupusTeam Member

NancyCarver, your therapist obviously shouldn't be counselling people about a topic that she knows nothing about! Please drop her like a hot rock! I know that many more therapists know something about Lupus. I hope that you will find the therapist who is informed about the issues that we have to deal with on a daily basis. I wish you well!

June 28
A MyLupusTeam Member

Nancy, you might want to search for someone whose profile specifically says they treat those with chronic illness. I have a close friend with lupus who has ongoing counseling for support, and I have gone to counseling at times. There are some who understand, so don't give up! You might see if they will give you a short intro phone call first so you can explain what you need and ensure they're willing and able to provide the support.🌹

June 28
MyLupusTeam

Finding a therapist who understands lupus can make a real difference in managing both mental and physical health. Mental health is just as important as physical health when living with lupus, and the right support can help with challenges like anxiety, depression, and the emotional weight of a chronic condition.

Here are Show Full Answer

Finding a therapist who understands lupus can make a real difference in managing both mental and physical health. Mental health is just as important as physical health when living with lupus, and the right support can help with challenges like anxiety, depression, and the emotional weight of a chronic condition.

Here are some helpful steps to find the right therapist:

- Ask your rheumatologist for a referral — they can often connect you with mental health professionals who have experience with chronic illness
- Contact your hospital or medical practice — many offer referrals to counselors, chaplaincy services, or patient navigators who can point you in the right direction
- Search for therapists who list "chronic illness" as a specialty — platforms like Psychology Today allow you to filter by specialty
- Look into telehealth options — these can be especially helpful on low-energy or high-pain days
- Check with your insurance provider — they can give you a list of covered mental health providers Don't hesitate to get a second opinion if a therapist doesn't feel like the right fit. Finding someone you truly connect with is worth the effort — you deserve support that actually helps.

June 27

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