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I am in pain all the time, and that is what keeps me awake often. On the rare times I am not in a lot of pain, I still can not sleep. I even take medicine to sleep, and even with that, I still have about 3-4 nights where I hardly sleep at all. Does anyone experience this?
You are absolutely not alone in this. Sleep struggles are one of the most talked-about topics among people living with lupus. Many MyLupusTeam members share very similar experiences — some can't fall asleep, others fall asleep but wake up shortly after, and some just lie awake for hours even without intense pain.
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I struggle with sleep because of pain and getting up to go to the bathroom. I do take medication to help but will likely go off if because I’m not sure it helping that much. I have found a lot of benefit from using a helight light. It is red and it fades over 28 minutes and I rarely have to do it more than once. You can also use it if you can’t get back to sleep. They use this in space and have found it to be incredibly good.
No it doesn’t wake my partner at all. That’s the beauty of it
Does it affect your partner? I can imagine my partner waking up when I turn on a red light.
@A MyLupusTeam Member That often happens to me too. I find that a cup of organic Hibiscus tea before bed helps me to relax. . It has no caffeine which I like. Hope you can get some sleep tonight, in the meantime, have a wonderful and relaxing Sunday 💜
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