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finally declared fully disabled, but friends and family members still dismiss this necessary decision. I just can't go to work anymore, I tried other employments in an office, my health is constantly shifting from still tolerable health issues, to bad or very severe flares. I've never been in remission. Sle-Sjögren Disease-APS-FactorV Leiden Mutation-CAD- Cryoglobulinemia-Raynauds Syndrome-AUITD-Pancreatic Insufficiency-Chronic Hypotension-Chronic Bradycardia-Etc.
@A MyLupusTeam Member 💜
What you're going through sounds absolutely exhausting — and getting that disability determination after such a long fight, while managing so many serious conditions at once, takes real strength. You don't need to justify that decision to anyone.
The dismissal from people close to you is unfortunately something many Show Full Answer
Praise God! Stay home and take care your babies. Hugs and keep fighting and we are all rooting for you!!
I am so happy you got your disability you certainly deserve it. Bless you big hugs
I'm glad you got disability! I totally feel where you are coming from. My last year of work had me concerned my state agency would try to make up a reason to let me go (at will state), being I had suffered several flares brought on by environmental issues (black mold at my worksite or coworkers spraying fragranced sprays around the building to cover the dank smell in the building, which caused asthma attacks, and subsequent lupus flares). I took early retirement to maintain my pension. If the state had pushed me out on made up issues, I stood to lose my pension. I had no opinion, noting how I had seen them treat other people with disabilities. At will states are notorious for letting people go without noted cause, so I would have to prove it was my disability they were targeting by letting me go in a court of law. The same agency actually asked me to come back after I retired, but after what I had been through there, and the fact black mold was still an issue, I could not risk my health further. With how I'm flaring right now, a part time job really isn't even an option now, but I don't want to discount possibilities in the future, if my condition becomes more manageable.
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