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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi Everyone. Happy Sunday 😊 I have SLE with Inflammatory Arthritis. Does anyone have muscle pain with their lupus or chronic headaches?

A MyLupusTeam Member asked a question 💭
Albuquerque, NM
July 12
 · 
Reactions
A MyLupusTeam Member

Thank you so much for your reply!! 😉

July 13
A MyLupusTeam Member

Yes. I had a Myomarker panel done and have overlapping Myocitis. My panel came out showing I have overlapping issues like Myocitis, Sclerosis, and Sjogrens (I put a dotted circle around the cluster in the diagram).

July 12
MyLupusTeam

Happy Sunday! 🌟 Both muscle pain and chronic headaches are very common experiences for people living with SLE, so you're definitely not alone in this.

Muscle pain affects a large number of people with lupus, especially during flares. It can show up as:

- General body aches and soreness
- Muscle inflammation (myositis), which Show Full Answer

Happy Sunday! 🌟 Both muscle pain and chronic headaches are very common experiences for people living with SLE, so you're definitely not alone in this.

Muscle pain affects a large number of people with lupus, especially during flares. It can show up as:

- General body aches and soreness
- Muscle inflammation (myositis), which can cause weakness in the shoulders, arms, and chest
- Cramping or stiffness, particularly in larger muscle groups

One MyLupusTeam member shared, "I'm in the middle of a flare-up — very fatigued and aching all over." Headaches are also frequently reported with SLE, and lupus-related inflammation affecting the nervous system can play a role in that.

Some things worth knowing:

- Fatigue and pain can make headaches worse
- Inflammation from lupus can affect the central nervous system, contributing to head pain
- Stress and poor sleep, both common with lupus, can also trigger headaches

It's always a good idea to mention both symptoms to your rheumatologist, especially if they're worsening, so they can help adjust your treatment plan accordingly. 💙

July 12

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