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I am now 79F My family insisted that I was mentally ill. I was depressed because I
never felt very good. I also stopped all pain medication.
I truly think I’m at the end of the road. The headaches,and body pain are truly disabling. I don’t know what to do about it.

August 5
 · 
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A MyLupusTeam Member

I understand. I thought about ending it also. We are fighters, survivors! Even the sunlight kills us. You got this!

August 5
MyLupusTeam

What you're going through sounds absolutely exhausting, and it's important to say clearly: feeling depressed when you're in constant pain and dealing with active lupus is not a sign of mental illness. It's a very human response to a very hard situation.

Depression is incredibly common with lupus — nearly 3 in 4 people with Show Full Answer

What you're going through sounds absolutely exhausting, and it's important to say clearly: feeling depressed when you're in constant pain and dealing with active lupus is not a sign of mental illness. It's a very human response to a very hard situation.

Depression is incredibly common with lupus — nearly 3 in 4 people with lupus experience depression or anxiety. Pain, fatigue, and feeling unwell day after day can wear anyone down emotionally. Stopping pain medication suddenly can also make both physical and emotional symptoms significantly worse. This is something to discuss urgently with your doctor.

A few important steps to consider:

- Talk to your doctor honestly about your pain levels and that you've stopped pain medication
- Ask for a referral to a pain specialist or psychologist who works with chronic illness
- Let your care team know you're feeling like you're at the end of the road — they need to hear this

You deserve proper pain management and emotional support. These two things work together — treating depression can actually help improve physical lupus symptoms too.

Please reach out to your doctor or a crisis line today. You don't have to carry this alone. 💙

August 5

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