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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Yesterday I woke up to hand spasms that won't stop and now my feet have joined the party. Any thoughts

August 5
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A MyLupusTeam Member

Haven't been able to see a Dr. Since February

August 5
A MyLupusTeam Member

I lost my insurance and I am handling this on my own

August 5
MyLupusTeam

It sounds like you've been doing a great job managing things — and then your hands and feet decided to throw a surprise party nobody asked for. Hang in there!

Spasms and tremors spreading to multiple areas are worth taking seriously, especially when they're persistent. This could be related to lupus affecting the nervous Show Full Answer

It sounds like you've been doing a great job managing things — and then your hands and feet decided to throw a surprise party nobody asked for. Hang in there!

Spasms and tremors spreading to multiple areas are worth taking seriously, especially when they're persistent. This could be related to lupus affecting the nervous system or muscles, a flare-up, or even a medication side effect. Some MyLupusTeam members have shared similar experiences, noting spasms and tremors tend to worsen during flares or when they're fatigued. One MyLupusTeam member noted their tremors spread to both arms and legs and were definitely worse during a flare.

Given that your spasms started suddenly and are now spreading, it's important to contact your rheumatologist soon. They may want to:

- Review your current medications
- Check for signs of a flare
- Refer you to a neurologist if needed

If you experience any of the following, go to the emergency room right away:
- Seizures
- Sudden severe headache or stiff neck
- Numbness or paralysis in your face, arms, or legs
- Trouble walking, speaking, or seeing

Don't wait too long on this one — getting checked out sooner rather than later is the safest move.

August 5

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