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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

After doing all the recommendations I still have insomnia which leads to flares. Any suggestions that might be new? I do nap during the day

A MyLupusTeam Member asked a question 💭
Oxford, MS
August 19
 · 
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A MyLupusTeam Member

@A MyLupusTeam Member, Thanks for the info on lavender oil , i think ill try that also

August 20
MyLupusTeam

It's really frustrating when you've tried everything and sleep still won't cooperate — especially when it's triggering flares. One thing worth flagging: daytime napping, while tempting (and understandable with lupus fatigue!), can actually make nighttime insomnia worse by reducing your sleep drive.

Here are some less Show Full Answer

It's really frustrating when you've tried everything and sleep still won't cooperate — especially when it's triggering flares. One thing worth flagging: daytime napping, while tempting (and understandable with lupus fatigue!), can actually make nighttime insomnia worse by reducing your sleep drive.

Here are some less commonly discussed tips that might help:

- Ask your doctor about the timing of prednisone — taking it in the morning rather than later in the day can reduce its impact on sleep
- Try a sleep diary — tracking when symptoms flare and when sleep suffers can help your doctor fine-tune your treatment plan
- Explore mind-body techniques like hypnotherapy or mindfulness meditation, which some MyLupusTeam members have found helpful beyond standard relaxation tips
- Consider a sleep study — if insomnia is persistent, your doctor may recommend one to dig deeper into what's going on
- Limit or shorten naps — if napping is necessary, keeping it to 20–30 minutes earlier in the day may help protect nighttime sleep If flares keep recurring due to poor sleep, it may also be a sign that your current treatment plan needs revisiting. Bringing this pattern up with your doctor could open the door to adjustments that better support both your sleep and overall lupus management.

August 19
A MyLupusTeam Member

They put me on Diazapam 10 mg. I sleep 6 to 7 hours every single night. I never thought I would take this because I use a more holistic approach to handle my lupus and Sjogrens. You can also use magnesium glycinate instead which is natural. I’m going to switch over eventually but I work 45 hours a week and I have seven very active grandkid so I need to keep my energy levels Good right now. I will try this during the time I have off. Skipping the nap or having an early nap with exercise would definitely help as well.

September 7
A MyLupusTeam Member

Dr Teals Lavender Lotion and Spray on my wrists & behind my ears is really helpful 👍🏼😁 and it's quite affordable!

August 20
A MyLupusTeam Member

Yes good morning not sure if you use all yours or not but I did hear recently or saw on somewhere that lavender oil behind the air helps put you to sleep. I’ve been using it for the past couple of weeks and it works.
Also, I take medication to new pills for pain and helps me sleep at night
If you don’t wanna take any more meds, it’s understandable but try the lavender oil
Hope this helps you get the rest you need🫶🏾

August 20

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