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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm 55 and was wondering if any of you are on HRT in any form and if so what has your experience been with it?

A MyLupusTeam Member asked a question 💭
Chesterfield, VA

I've got so much fatigue from the lupus, RA, and also my PTSD. I'm sure menopause is contributing as well and was just curious about any of your experiences with hormone replacement therapy? Also, any recommendations on vitamins or supplements for bone health? I take 2000 iu vit D, but read it should be taken with vitamin K?
I know that's a lot of questions /info, and I will definitely talk to my doctors, just wanted to hear any of your experiences. Thanks in advance 🫶🏻

August 20 (edited)
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A MyLupusTeam Member

@A MyLupusTeam Member Thank you so much I appreciate that as I was t aware that estrogen could aggravate lupus. I did know about the blood clots and risk of breast cancer, which is scary. I'm also trying to protect my bone health (walking, light weights when I can) . Thanks again for your help! 🩷😊

August 20
A MyLupusTeam Member

Kim, I suggest discussing this with both your rheumatologist and ob/gyn, as estrogen can aggravate lupus, predispose to blood clots, and, with prolonged use, raise the risk of breast cancer. I hope you get some relief!

August 20
MyLupusTeam

It's great that you're already planning to discuss this with your OB-GYN — that's exactly the right move! HRT can help with menopause symptoms like hot flashes and night sweats, which may also be contributing to fatigue. However, it's not suitable for everyone with lupus, so it's worth going into that appointment Show Full Answer

It's great that you're already planning to discuss this with your OB-GYN — that's exactly the right move! HRT can help with menopause symptoms like hot flashes and night sweats, which may also be contributing to fatigue. However, it's not suitable for everyone with lupus, so it's worth going into that appointment well-informed.

Here are some important things to know about HRT and lupus:

- HRT can potentially trigger lupus flares
- It may increase the risk of blood clots
- People with active lupus or a history of blood clots are generally advised to avoid it
- High antiphospholipid antibodies can also make HRT riskier
- Non-oral estrogen may be a safer option for some, as it's less likely to affect blood clotting

The type of HRT — whether estrogen or progestogen — also matters and should be weighed against your personal health history. As for fatigue specifically, lupus-related fatigue is incredibly common — affecting up to 90% of people with lupus. Menopause can absolutely pile on top of that, making everything feel harder.

Some general fatigue management tips that may help in the meantime:

- Plan activities during your highest-energy times of day
- Eat a balanced diet with lean proteins, whole grains, fruits, and veggies
- Talk to your doctor about vitamin D supplementation
- Practice good sleep habits
- Stay as active as you comfortably can

Bring up all of your fatigue concerns at your appointment — the more detail you give your doctor, the better they can help tailor a plan for you. You've got this! 🫶🏻

August 20

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