Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Lake Panasoffkee, FL

I was diagnosed 3 months ago. My biggest challenge has been the brain fog. I stopped working because I can’t multi task anymore, I also have problems finding information in my brain and outside of it. When I can find the information I comprehend but not able to explain it to someone else. My whole life I have worked customer service. That’s pretty much what I have to do regurgitate information and help customers understand. I am wondering if anyone has found a way to work around this and… read more

August 31
 · 
Reactions
A MyLupusTeam Member

Extra rest is important when you have this, Karen, and getting your medication (usually HCQ is the first-line treatment) in your system takes time. You have just been recently diagnosed, so don't give up, as it takes up to six months for the med to work.

In the meantime, plenty of rest, UV protection (SPF 70), a healthy diet, and stress reduction are key. Give yourself this break and see if you're able to return to work. I was fortunate not to have this during my working years, but since age 50, I've been unable to work and have brain fog with flares.

I hope it works out for you! Please keep us posted.😘

September 1
MyLupusTeam

First, know that what you're experiencing is very real and very common with lupus. Brain fog can hit hard, especially in customer-facing roles where quick thinking and clear communication are everything. Three months in is still early days, and many people do find ways to adapt over time. Here are some strategies that have Show Full Answer

First, know that what you're experiencing is very real and very common with lupus. Brain fog can hit hard, especially in customer-facing roles where quick thinking and clear communication are everything. Three months in is still early days, and many people do find ways to adapt over time. Here are some strategies that have helped others in similar situations:

- Write everything down — Keep a notebook or daily planner with key information, scripts, or talking points you need for work. Many MyLupusTeam members swear by this.
- Use digital reminders — Calendar alerts and phone reminders can act as your external memory bank.
- Pre-prepare responses — In customer service, many questions repeat. Writing out answers in advance means less real-time retrieval from a foggy brain.
- Give yourself grace — Some MyLupusTeam members find that warning others they may need a moment to find their words reduces pressure significantly.
- Identify your flare triggers — Brain fog often worsens during flares. Tracking triggers like stress, sun exposure, or poor sleep can help you manage your worst days. It's also worth speaking with a cognitive therapist. They specialize in exactly these kinds of challenges and use practical tools like memory games and structured techniques to help rebuild cognitive function over time.

Most importantly, talk to your doctor about your symptoms. Sometimes adjusting medication or addressing underlying issues like sleep problems can meaningfully lift the fog. You don't have to just push through it alone.

August 31

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Denver, CO

A MyLupusTeam Member asked a question 💭
Puyallup, WA