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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 2
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A MyLupusTeam Member

My Rheumatologist said I need to go to an ENT for tinnitus. He said it’s not caused by Lupus or from hydrochloraquine.

September 2
A MyLupusTeam Member

I occasionally get a thumping sound in my ears, my eyes hurt due to Sjogrens, and my balance issues are likely due to Myocitis and axonal polyneuropathy. Unfortunately, no one wants to treat anything, because I have so many overlapping symptoms, so my balance will likely get worse.

September 2
A MyLupusTeam Member

Rheumatologist tells me these symptoms are probably not caused by my lupus

September 2
MyLupusTeam

That combination sounds really exhausting, and you're definitely not alone in experiencing it. These three symptoms together can absolutely be linked to lupus in a few different ways.

Tinnitus (that ringing or whooshing sound) in lupus can be connected to:

- High blood pressure, which affects about half of people with lupus
- Show Full Answer

That combination sounds really exhausting, and you're definitely not alone in experiencing it. These three symptoms together can absolutely be linked to lupus in a few different ways.

Tinnitus (that ringing or whooshing sound) in lupus can be connected to:

- High blood pressure, which affects about half of people with lupus
- Changes in blood flow or vascular issues related to lupus
- A rare condition called idiopathic intracranial hypertension, where fluid pressure builds around the brain Aching eyes are also quite common with lupus — up to one-third of people with lupus experience eye-related symptoms. These can range from dryness and inflammation to pressure behind the eyes.

The off-balance feeling may tie into blood pressure fluctuations or inner ear involvement, both of which can be lupus-related.

The important thing is to mention all three symptoms together to your doctor or rheumatologist, since they may share a common underlying cause that needs attention. Don't brush any of them off as separate issues — the full picture matters!

September 2

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