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A MyLupusTeam Member asked a question 💭
Alberta, Canada

Well my friends I have an upcoming rheumatologist appointment that I have a lot of anxiety about. I haven’t been to a rheumatologist in more than 10 years. I have had some very bad experiences with three previous rheumatologists. I would go so far as to say my experiences have been traumatic. The last lady I saw I left her office in tears feeling defeated, ashamed and embarrassed. I told my GP I would not consent to going to another. However, my Opthamologist thinks I may have Sjorgrens disease… read more

September 7
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A MyLupusTeam Member

Monika, best wishes and good luck with the appointment. I suspect you've had unusually bad luck previously, and that's bound to change. Please let us know how it goes. I find that taking a few deep breaths helps before going into an exam room when I'm feeling nervous.😘

September 8
A MyLupusTeam Member

@A MyLupusTeam Member. I agree with @A MyLupusTeam Member! Being traumatized makes it so much harder to step through the doors of yet another doctor. But I pray this appointment is productive and positive! 🙏🏾💜

September 7
A MyLupusTeam Member

@A MyLupusTeam Member Please go to your appointment. I understand your anxiety but if your ophthalmologist believes you need to be seen, please go... If there is someone available to go with you to your appointment, take them with you. Bring a notebook with questions you want answered... I hope that this time you have a positive experience and you get the help you need.

September 7 (edited)
MyLupusTeam

First of all, what you're feeling makes complete sense. Past experiences with doctors who left you feeling dismissed or ashamed can absolutely create real anxiety about future appointments. That kind of hurt doesn't just disappear, and it's okay to acknowledge that.

The good news? You can walk into this appointment with a Show Full Answer

First of all, what you're feeling makes complete sense. Past experiences with doctors who left you feeling dismissed or ashamed can absolutely create real anxiety about future appointments. That kind of hurt doesn't just disappear, and it's okay to acknowledge that.

The good news? You can walk into this appointment with a plan that puts *you* more in control this time. Here are some things that might help make this appointment feel safer:

- Bring someone with you — a trusted friend or family member can advocate for you, help you remember what was said, and just make you feel less alone in that room
- Write everything down beforehand — your symptoms, your concerns, and your boundaries. Having it on paper means you don't have to rely on a brain that's already overwhelmed
- Set your agenda early — you're allowed to tell the doctor upfront what you need from them, including being treated with respect
- Speak up if something feels wrong — it's completely okay to say "I don't feel like I'm being heard right now"
- Remember you can leave — and if this rheumatologist isn't the right fit, you deserve one who is A good rheumatologist-patient relationship is ideally a long-term one built on trust and open communication. You deserve that. This appointment doesn't have to look like the ones before it.

Your eyesight matters. *You* matter. Showing up for this appointment, as scary as it feels, is an act of real courage. 💙

September 7

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