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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 24
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MyLupusTeam

Feeling detached, foggy, or "not quite there" during a lupus flare is something many people with lupus experience. Brain fog (also called cognitive dysfunction) affects up to 70–80% of people with lupus at some point, so you are definitely not alone in this.

That disconnected, dissociated feeling can be part of how brain fog Show Full Answer

Feeling detached, foggy, or "not quite there" during a lupus flare is something many people with lupus experience. Brain fog (also called cognitive dysfunction) affects up to 70–80% of people with lupus at some point, so you are definitely not alone in this.

That disconnected, dissociated feeling can be part of how brain fog shows up. Common cognitive symptoms include:

- Poor concentration or focus
- Forgetfulness
- Trouble processing information
- Difficulty holding conversations
- Feeling mentally "slow" or detached from what's happening around you The main reason this happens is inflammation. When lupus causes inflammation in the nervous system, it can disrupt how the brain processes information, which can create that foggy, detached feeling. This is sometimes referred to as "lupus cerebritis."

Flares tend to make these symptoms worse, and other factors can pile on too, such as:

- Poor or disrupted sleep
- Anxiety or depression (both common with lupus)
- Poor nutrition during difficult flare periods It's really important to mention these feelings to your rheumatologist, especially the dissociation aspect, as they may want to check how lupus is affecting your nervous system. Managing inflammation through your treatment plan is often the key to easing these symptoms.

A MyLupusTeam member shared that their brain fog is "definitely worse during a flare" — so tracking your triggers and flare patterns can also help you anticipate and manage these episodes.

September 24

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